Saturday, August 18, 2007

Rest, rest, and more rest

Red alert -- visiting needs to go on hold for awhile!

As Nancy says, Wy has something like 30 or 35 interactions everyday with the medical staff, and when you start adding more people to the day, it adds up to a heck of a lot of interactions for a kid with a brain injury, for whom any interaction is tiring. Tim and Nancy are realizing now that their green light on starting visits was premature. Sorry, all! It'll change at some point.

Yesterday Wiley got moved into a private room, thanks to his mom and dad's consistent effort. Well -- private, but with the big benefit of having a second bed for mom to nap in during the day while Wiley's asleep, or dad to attempt to sleep in at night. Tim's big coup today was to get the nursing staff to eliminate all unnecessary and disruptive visits between 10:30 pm and 7 am. Yes, he actually thinks it will be helpful to Wiley's healing to get sleep.

Wiley's got a few big, apparent brain function issues right now. He's seeing double or quadruple (can you imagine how hard it would be to feed yourself in that circumstance? But somehow he's managing. I think it must be pretty tiring in and of itself to always see multiple images of what you are looking at.) Wiley told his mom today that he can't really picture his room at home. He also seems to have trouble creating new short-term memories. He keeps trying to get up out of bed, even though he's not really stable enough to do so without some help and even though his parents keep explaining to him why he can't. It's hard to tell how many of these challenges are only for now, and if some might persist.

On another note, Tim's been trying to find a helmet to fit Wiley that has some degree of "cool." Tonight's try wasn't quite big enough to fit Wy, but Tim decided he should maybe keep it for himself. If you don't know, Tim's also been doing his own fair share of skateboarding in the last couple of months, ever since Wiley got his longboard and Tim decided he'd really enjoy one, too. So, yes, it would be perhaps surprising to see a 40+ guy skateboarding back from the grocery store -- but maybe even more so to see someone of that size and age do so in a charcoal skateboard helmet. But how could he not?

1 comment:

kirkfamily said...

So much wait and see. I hate that.

Nance and Tim I love that you both are such good medical advocates.

Still going by Memorial and sending our love.
Susan, Kris and Gracie