Sunday, August 12, 2007

Slowly up from the depths

If you come up too fast, you get the bends, right? Wiley’s coming up slowly. He did get his brain monitor out this afternoon, and it was apparently pretty painful; the nurse had to dose him with morphine, which pretty well put him back under for a while. (He even started snoring, which pretty quickly had his exhausted mother napping herself, in a chair in the corner of the room.)

It’s been a very tiring day for Wiley, starting with the CT scan this morning, then the breathing tube out, then the brain monitor out, and culminating tonight with the struggle to find his bearings and a comfortable position despite his brain fog. Without the restraints, but with the neck collar, foley, IV, and a supplemental oxygen mask (his oxygen level was low this afternoon, so they gave him an external mask with moist air, the better to help his throat recover), Wiley was only a little limited in his ability to move. Earlier in the evening, Grandma Esther sang to him, and that seemed to keep him quiet and calm, but when the music ended, the gymnastics began.

Turns out both his dad Tim and Uncle Steve, neither diminutive guys, as well as the nurse, were needed to keep Wiley from tying knots in his remaining tubes. He was even up on his knees at one point. It took all Tim and Steve’s strength to keep Wiley from getting completely twisted up. While they are very glad to have him out of the restraints, it looks like it’s going to be a pretty demanding job to let him stay that way. Wiley was asked by the nurse for the second time tonight if he was in pain, and since he indicated yes (a nod) this time, he got some morphine and is now resting a bit more quietly.

Speech is still beyond him; he tries to speak but cannot formulate words, though he can make some garbled sounds. Luckily nodding and shaking his head seem to be pretty manageable for him, and that will do for now.

6 comments:

Anonymous said...

Thank goodness for some good news. May it keep coming and coming. You are all never far from my thoughts. I'm back in California so I suspect my prayers will get to you more quickly now.

Lots of love,
Megan

Suzanne said...

Thank you so much for these blog entries - there are a lot of people checking them! Our love and thoughts are with Wiley, Nancy and Tim.

Suzanne, mother of Will C.

b-luv said...

Hello from Brenda and Myles-- sending our love.

Anonymous said...

Considering where we were less than a week ago,Wiley's coming up pretty fast. We are thankful for the progress and good indicators. It has got to make it a little less stressfull on both of you (or all of the care givers). That hole in the head bit conjurs up a lot of possibilities for future nickmames. We'll let his peers deal with that.

Rod Williams said...

Everyone on the "Bottle" set is on the "keep thinking good thoughts about Wiley" train. Last week, everyone who stopped by the camera truck was truly concerned about his welfare and wanted to know the latest update. This blog is great for passing along the info.

Meredith Campbell said...

Hey Nancy!

Back from KL at last and am now obsessively checking the blog again but from a different locale ; )

I couldn't post from there but was glad I could keep up with the latest. Loved Wiley's response to listening to Ani - Dexter would have done the same!

So glad things are on the improve - I've sent my love over with Megan to you.

Meredith