Wednesday, September 5, 2007

The new normal

So what do you do when you are 14 years old and not in the hospital, but not in school like all your friends? And you have a honking big scar with a lot of staples snaking its way across your skull, and nearly no hair? And your life is now strangely divided into, in your own words, into “before I ate it” and since?

Well, you certainly enjoy doing not much at home with your family. You watch some TV. If you’re Wiley, you even go hang out with your cousin, mom and dad, aunt and uncle, at a wrap party in Sonoma for “Bottle Shock,” the film Tim and Steve have been working on. (The crew working on the film were tremendously accommodating and supportive of the family in these last weeks.) You go with your mom to buy clothes for school on the conviction that you will soon enough get to go there. You rest. You talk to friends on the phone. You visit with a couple of kids who got greenlighted to visit over the weekend. You update your MySpace page.

And you take out the trash.

Yup. And all without a helmet, with the neurosurgeon’s blessing. And to think, just a week ago, he was having his skull reassembled in the operating room, a week before that still struggling to walk unassisted. A week before that, in the ICU, out of it enough so that a laugh with his dad was a big development. A week before that – well, we won’t even think about that.

Today Wiley is meeting with an at-home tutor, the first step towards rejoining the rest of the kids in school – the schedule for which remains unclear. He will also today get to meet with his beloved bass teacher to start back in again on his music training. He’s hopeful that he will be able to catch up with the symphony class he’ll be joining in school, and maybe even able to participate in a performance later this fall. Through all of this, his doctors and therapists will be learning more about what will take some time for him. The good news is that there’s really nothing that’s come up for him that isn’t improving noticeably already.

Till then – well, there’s plenty of stuff to work on. And music to play!

2 comments:

Anonymous said...

So glad to get the up-date. Sounds like the healing process is well underway. PATIENCE is the word now. Love and prayers are still with all of you. Aunt Gail and Uncle Bruce

michelle f said...

Nancy, got your blog from Timm. This is Michelle, formerly of Photo Supply. I'm so sorry to hear about your son, but happy to read that he's doing so well!(and you, too) You guys are in my thoughts.